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Welcome.

Let this be the place we allow the beauty of Down syndrome to shine on the world.   

Caring for Miss Lottie Post Surgery

Caring for Miss Lottie Post Surgery

To leave the hospital and care for Charlotte from our home, is very much like all other things in life; beautiful, scary, challenging and requiring full reliance on God. Our daily routine is still under construction, but is already at a much better, more relaxed pace than day one. The sun is still out, the children are as loud and crazy as ever, and my heart feels so stuffed with gratitude and praise to have more time with them and obviously, Lottie. We are squeezing in snuggles and walks around the block between every feed/medication administration.

We came home with some baggage, emotional and mechanical. Mechanics wise, we have set up the feeding tree and organized our medical supply drawer. Emotionally, I am carrying some soreness. It feels like the past 35 days were an intense workout, and my body is now off the adrenaline, and feeling sucker punched with a build-up of fatigue. My heart is also tender in areas.

Our victory comes with a tinge of sadness. No one wants to witness, nor recollect, their child enduring horrific amounts of pain. Our praising God for being with us each step of the way, and carrying us through to the end, is blended with a new request for His comforting. We celebrate and give ourselves room to heal from the battle wounds we each acquired, though in varying forms.

Friends have been at the ready, helping with grocery pick-ups and taking the boys to the park. We are incredibly blessed by the beautiful hearts surrounding us. Thank you for continuing to pray. My next project will be putting together an album full of your pictures! Today however, I share a small video of one of our weekly tasks. Enjoy!

A Mother’s Duty

A Mother’s Duty

When Lottie Got Sick

When Lottie Got Sick